Sage Delio's father died in 2011 from a rare genetic blood condition called Hemochromatosis. This is only one of the disorders that NORD researches and hopes to eliminate. There are so many painful and life threatening rare disorders that need our help in spreading awareness and research funding. NORD works to make the lives of those living with rare disorders have a better quality of life through new treatments and technologies.
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OFFICIAL WEBSITE: https://rarediseases.org/